WE ARE GETTING EPI-743 HERE IN GERMANY!!!!
I had a conversation with Dr.Miller Thursday evening, he said "how can i help you?" and i said right away "We need EPI!!!!"
Dr.Miller smiled so we talked about our situation and how we can receive EPI here.
It is only first step but it is a start so now we can focus on that.
We must find suitable physician and hospital here so that will have to contact Dr.Miller and arrange the next steps.
It will not be easy, we would have to go trough a lot of test like blood samples, urine samples, EKG, Echo, EEG and MRI brain Spectroscopy but we set our minds that we have to do everything that we can for Nina and Darin so we really hope it will worth all for them.
Sun is fun:-)
We are really thankful to Dr.Miller for having understanding for our situation, and the fact that we can not easily travel to Rome, so that makes Nina first patient treated in Germany and anywhere in Europe besides Rome,Italy.
First time in a Italian restaurant on the river Rhein
Now we see that our blog have some meaning after all!!!
Different view from the bedroom, at the garden!!!!
Now we also have to do a lot of work here, first we must find some physician that will contact Dr.Miller from Edison Pharmaceutical and to start the process for getting EPI-743 here, second, we must have our insurance to cover all the expenses for the examination, i am still not working, i wait permission from the authorities to practice doctor's profession in Germany, because i have changed my specialization from internal medicine to neurology, i hope i can start real soon, and don't have to worry about that.
We finished with moving and we really enjoy our accessibility, you see on this picture i am actually thaking picture from our living room and i see Darin, Nina and Tanja, we actually move most of the stuff trough the window.
We have also a garage and cellar so we have plenty of space even doe the apartment is not so big, only 64 m2, for us is the whole world:-)
First time at the swinger!!!!
Thank you all for your prayers!!!!